Let us touch the dying, the poor, the lonely and the unwanted
according to the graces we have received and let us not be ashamed or
slow to do the humble work.

- Mother Teresa

About Me

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Sunny Florida, United States
I am the proud mom to 6 kids: Natasha, 24, Nikolai, 20, Reese, 20, Maylee, 14, Erik, 10 and Violet, 7. The kids come from Russia, Ukraine and China; I'm so proud of my family sometimes I think I'll burst and I needed an outlet for it - so I've created this weblog. :o)
If you can't feed a hundred people, then feed just one.
- Mother Teresa

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One of the greatest diseases is to be nobody to anybody.
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Saturday, November 19, 2011
A lot has been going on with me medically and a lot of people are asking a lot of questions, so to avoid having people wonder and to maybe even keep rumors from getting started, here is the skinny on the situation:

I had a slight problem that caused my doctor to order a CT scan. This was interesting, because I am the type of person who is never sick. Nothing ever goes on with me medically. So, with interest, and a bit of amusement, I had the CT. The nurse called after the results were in and said that the doc now wanted an MRI, but didn't tell me why. So, again, with interest and a bit of amusement, I had the MRI (these were done of my abdomen).

The doc called me in. With concern, he told me that it looked like there was a mass on my pancreas. He referred me to a GI doc (which I felt was good, since at least he didn't refer me to an oncologist!!). After a nightmarish week when I was convinced I had pancreatic cancer, the GI doc studied the reports and to my HUGE relief, told me he really didn't think that it was a mass (NOT CANCER!!), but a big aneurysm. He had spoken with a radiologist at the hospital and because I have no history of alcohol or cigarette use, or drugs, or a family history of aneurysms, or pancreatitis, or trauma, they really could not understand why in the world it was there, but it was. They scheduled me for an angiogram. They would thread a catheter tube up (starting at my groin) my artery to the aneurysm (ballooning of the artery) and fix it. Well, they tried. Once they got up there, they realized the job was too complicated for them at that facility and I needed a more sophisticated hospital. It was a real letdown...

So we finally secured an appointment with a vascular surgeon at Mayo Clinic in Jacksonville. I had my scans and reports sent up there beforehand. We met with him and he was as confused as the local guys were as to what was going on. The aneurysm was in a VERY unusual place and was very large. Armed with the knowledge of the first angiogram info, he felt that he could do another one, only more sophisticated one, and approaching the thing from both ends. We scheduled it.

Well, at our pre-op appt, the doc said he'd consulted with several other vascular surgeons and they said that they noticed something: a nearby artery was very narrowed and the artery with the aneurysm was compensating for it, and the pressure caused from the double duty is what caused the ballooning, so simply fixing the aneurysm wouldn't solve the problem - the narrowing would need to be fixed, or another aneurysm would grow. I would need major abdominal surgery to fix the narrowing. Nice.

I called my mom, who is always faithful to help me whenever I need her. She made plans to come to help take care of us for my December 5 surgical date.

At my pre-op appt, we had yet another curve ball thrown at us: the doc again consulted with several other vascular surgeons, and they wanted to do another angiogram for diagnostic purposes: he wanted to zone in totally on the aneurysm and narrowed artery and get a much better look before making any decisions on big surgery. After the images are taken, he will send them to the vascular surgeons at both Rochester and Arizona Mayo clinics so they can all see them and a recommendation can be made.

He said that he is aware of only THREE other documented cases like mine worldwide have been found, which is why they are being so careful and why he is getting so many consults from other surgeons!!! I'm glad that they are trying so hard, but I'm anxious to get this thing fixed... I don't LIKE walking around with a huge aneurysm (plus a smaller one) that could "blow" at any moment!!! I am otherwise very healthy, other than my weight, so that should work in my favor.

But that's what's going on with me. I will next have an angiogram on Dec. 5 and after the doc shows the images taken to the other docs in the other regions, a decision will be made and the recommended procedure will be scheduled pretty soon afterward.

This was a long post, but it's a long story! Thanks to any of you who made it this far! :o)

5 comments:

Amy L said...

Praying for you Missy! Don't worry, God's got this one! And I have to say again, your mom is the best!! Love you!

Faith said...

Oh, my dear friend! i'm sorry to hear that you've been going through so much. i will be thinking and praying for you and your family. Rest easy that your mom will be there to help things going at home. i wish i was there to give you a great big hug. i love you, Missy!

Faith

Linda said...

Missy! What a scary week you've had! You're in my prayers! Hugs, Linda

Adoption Adventure said...

Oh Missy I am so sorry you are having this health issue. I know only too well what it feels like to be totally healthy and energetic one day and then the next have this huge worry. God is faithful and he will sustain you. I will be praying for you and the doctors who will be working with you. Hugs and blessings Rhonda

Carmen said...

I'm so sorry that you're having troubles like this, Missy. However, I'm thankful that the doctors are being thorough. I'll be praying for you and your family AND for God to guide the doctors.

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My family

My family
Nikolai, Mark, Missy, Reese, and Erik

Nikolai, 19

Nikolai, 19

Reese, 19

Reese, 19

Erik, 9

Erik, 9

Daisy

Daisy

Mary

Mary

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